15.30
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17.00
Gutenberg |
Plenary
Session E-PS 1: Psychosocial Impact of Genetic Disease
Chair: G. Evers-Kiebooms and L. Kerzin-Storrar
E-PS01. Living with Marfan
syndrome; the European experience. (20')
S. Vangoidsenhoven;
Medische Genetica, Gent, BELGIUM.
E-PS02. Living with FAP in the
family (20')
M. Schmedders;
University of Hamburg FSP BIOGUM, Hamburg, GERMANY.
E-PS03. The Psychosocial Aspects
of Skeletal Dysplasia and the Impact of Molecular Genetic
diagnosis-An Exploratory Study (20')
S. Alam1, R. Macleod1, D. Donnai1,
D. Craufurd1, M. Wright2;
1Academic Unit of Medical Genetics, and Regional
Genetic Service, St. Mary’s Hospital, Manchester, UNITED
KINGDOM, 2Institute of Human Genetics, International
Centre for Life, Newcaste-upon-Tyne, UNITED KINGDOM.
E-PS04. Living with
Achondroplasia in an Average-Sized World (20')
S. Gollust1, R. Thompson2, B. B.
Biesecker1;
1NHGRI/NIH, Bethesda, MD, 2Johns Hopkins
University School of Public Health, Baltimore, MD.
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